Day +13

Good morning everyone, I hope you had a wonderful weekend.

I slept well, interruptions were the usual bathroom breaks, observations and infusions.

Breakfast eaten, showered and bloods given. Even managed to do some stretches, I’m still feeling physically tired.

Doctors should be doing their rounds but no idea when.

Lunch was a jp with tuna for me, with cheese for Dr N.

Doctor has been, very happy with my progress, they want to see my blood results from today before they decide what to do.

Good news, my blood levels are rising which is fantastic news, my neutrophils have been over 1 for 2 consecutive days therefore the consultant is super happy with my progress and is discharging me on condition my last observations later on are ok.

We waited…and waited…dinner came and went…and we waited…observations came, checked, all ok and went….my last nightly injection was given, my take home drugs were delivered, cannula removed and I was good to go home!!!

We’re now home, I’m so glad to be back home, I’m feeling tired after such a long day.

Huge special thank you to Dr N, only you know what I’ve been through ❤️😍❤️

Thank you everyone for your support and kind messages.

Time for bed and undisturbed sleep, no observations or infusions.

Good night all, sleep well.

❤️🙏🏽

Day +14

Good morning all, I hope you had a lovely evening.

I slept well, no constant interruptions which was good.

Feeling good but tired, walking from the bedroom to the bathroom is tiring.

Ate breakfast, porridge today, at the moment, when I look at food, it’s just energy.

Had a telephone call from my clinical nurse specialist and she went through all of the things I can and can’t do, eat and not eat. It’s going to be a difficult few months but each day I should be getting stronger. All signs are very good. Other patients usually get discharged after day +20 so I’ve done really well. Exercise and diet have played and are playing a major role for me.

As my hair is falling out, I decided to have a trim this morning.

As the day has progressed, my energy levels have declined but I feel as if I’m making very slow progress.

It’s been a relaxing evening, totally shattered now and time for bed. I’ll be wearing a hat in bed, I don’t want my head to get cold.

Good night all, sleep well.

❤️🙏🏽

Day +15

Good morning everyone.

I had a good sleep but again woke up a few times for bathroom breaks.

I’m feeling tired, I’ve decided to fully rest for the next 4-5 days before I start basic exercise.

Breakfast was a bowl of cornflakes, just something plain. My tastebuds don’t really want porridge.

I attended the monthly MacMillan Myeloma support zoom meeting, it was good to see how others are doing. People are surprised that I managed to get discharged after 13 days, I don’t think it’s sunk in yet about how well I’ve done. I’m still taking each day as it comes, onwards and upwards.

I’m still resting, even slight walking is making me breathless.

No plans for the evening, just more rest. Yesterday, the nurse also said that I’ve experienced something similar to a major operation and I need to slow down and be easy on myself. I’m trying.

Time for bed, I feel so exhausted. Let me describe how I feel, imagine not eating for a day and then walking 10 miles. That’s how I feel, walking from the sofa to the kitchen, about 10 metres and I’m out of breath, I have to pause and walk slowly back and sit down to recover. I’m eating very healthy food and both lunch and dinner are full meals yet my energy levels aren’t increasing because my internal body is working its butt off.

Good night all, sleep well.

❤️🙏🏽

Day +16

Good morning everyone, I hope you’re all well.

I slept well but I feel so weak and tired, I just haven’t got any energy. I can usually push myself but my energy level is literally zero.

Breakfast eaten, now some rest.

It’s been a truly restful afternoon, still feeling tired but making very slow progress.

I have to say a huge thank you to all of my international readership.

It’s been a mentally tough evening, just so hard to sit and rest, because of my lack of concentration, tasks such as reading, using my laptop or puzzles last for about 5 minutes. I can’t even go for a walk. Still feeling very exhausted.

Tomorrow is a new day.

Time for bed, positive thoughts while I sleep.

Good night all, sleep well.

❤️🙏🏽

Day +17

Good morning everyone, I hope you slept well.

I had a good sleep but still feeling exhausted.

Cereal for breakfast, shower soon.

Sleeping does allow me to think and the following describes how I’m feeling:

I’m at point A and my destination is point B, in between both points is a huge brick wall. Previously, I could knock out chunks of bricks and make short work of the wall. Presently, because of my health, I have no choice but to remove one single brick at a time and that’s so not me, that’s why it’s so mentally hard for me. I need to slow down and stop being so hard on myself.

I managed a 20 metre walk today, I felt ok but as the day progressed, I felt more and more tired. I would mark today as a bad day where the body is working its butt off internally, I don’t think it had anything to do with the walk.

I’ve ate very healthy food today so I know it’s not that.

It’s been a total restful day, mind wanted to help Dr N but body just overruled and said NO!!

Time for bed and restful, recovery sleep.

Good night all, sleep well.

❤️🙏🏽

Day +18

Good evening everyone, I hope you’re having a great day.

I had a good sleep but tiredness is still well and truly in control.

It’s been a totally restful day, the odd snooze while watching tv.

I’ve ate very well today. I’m feeling physically shattered and mentally stronger. I’ve read reports that people in my position after SCT have felt the same as me, everyone says that patience and rest is the key and it’s a marathon and not a sprint. Changes will happen in months rather than weeks.

Time for bed, I’m feeling tired and best to have an early night.

Good night all, sleep well.

❤️🙏🏽

Day +19

Good morning all, I hope you’re well.

I slept well but woke up totally shattered.

I had a big bowl of cereal hoping that would at least give me a slight boost, nope, still felt shattered. A shower and then it looks like another day of rest.

Well, it’s been a bad day, I’ve felt totally shattered all day, chemo brain has made an appearance. I’m still pushing!!!

Time for bed, I need an early night.

Good night all, sleep well.

❤️🙏🏽

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