{"id":1546,"date":"2025-05-12T08:43:02","date_gmt":"2025-05-12T07:43:02","guid":{"rendered":"https:\/\/jesangmyelomajourney.wordpress.com\/?p=1546"},"modified":"2025-11-23T17:17:39","modified_gmt":"2025-11-23T17:17:39","slug":"77-0-monday-12th-may-sunday-18th-may","status":"publish","type":"post","link":"https:\/\/tapaleisure.co.uk\/wp\/2025\/05\/12\/77-0-monday-12th-may-sunday-18th-may\/","title":{"rendered":"77.0 Monday 12th May &#8211; Sunday 18th May"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\"><strong>Monday 12th May<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Good morning everyone, I hope you\u2019ve slept well.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">I slept well, I was asleep before 10pm, I was so tired.  Woke up still tired but not as bad, less muscle ache but chemo brain is present.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">No time for stretches, just breakfast, shower and straight out of the door to the hospital.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Drive in was slow, traffic everywhere even though I left at 7.30am. It took about an hour to arrive. Parked up and have checked in at the chemo lounge, no bloods today as I did that last Thursday. There\u2019s a big sign saying the pharmacy has a 3.5 hour delay, I think it\u2019s going to be a long day!!  I\u2019ve taken my pre meds and now I wait.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">I\u2019ve been called, weight and bp taken, nurse has said I have to wait for an hour before anything further.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Well well, I\u2019ve been seen, given 2 injections and all completed, now I have to wait at the pharmacy for my prescription, they\u2019ve said it\u2019s nearly ready, I won\u2019t hold my breath!! \ud83d\ude1c<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">All done, I\u2019m leaving and it\u2019s only 11.15am.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">I\u2019m home, took an hour so not bad.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Treatment 5 completed, 3 more to go.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">I\u2019ve been a restless all afternoon and evening, as well as so tired.  I did try to have a nap but just too restless.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">This evening I\u2019m still tired, no muscle ache but as ever, chemo brain is here.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Let\u2019s see if I can sleep after the steroids this morning, only 5 tablets rather than the usual 10 so that should make a difference.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Good night all, sleep well.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u2764\ufe0f\ud83d\ude4f\ud83c\udffd<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Tuesday 13th May<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Good afternoon everyone, I hope you\u2019re well.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">I slept well, woke up feeling exhausted, pushed myself to do full stretches followed by breakfast and a shower.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">A few chores to do this morning but I\u2019m feeling so exhausted, my chemo brain is saying do some exercise but my body and every muscle is saying no chance, I just have no energy.  This appears to be an accumulation of all the 5 chemo treatments so far which explains how I\u2019m feeling.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">All day I\u2019ve felt exhausted, every muscle in my body feels like it\u2019s on empty and as well as chemo brain, my head also feels like I\u2019m floating, yep, it\u2019s frustrating.  I managed to do a few chores but I just don\u2019t have the strength.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Time for bed, a good sleep and waking up refreshed.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Good night all, sleep well.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u2764\ufe0f\ud83d\ude4f\ud83c\udffd<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Wednesday 14th May<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Good afternoon everyone, I hope your week is going well.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">I slept well, woke up feeling fatigued, my legs feels so heavy and all muscles have no energy.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Breakfast and shower, no energy for anything else.  I really wanted to go for a walk and do some chores but I just don\u2019t have any energy, my mind is willing but my body just can\u2019t cope.  Very frustrating but it\u2019s all part and parcel of the treatment.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">I decided not to go for a walk because I wanted to stay near home so I decided to mow the lawn, I did push myself and glad I did, when I finished, I did feel tired but just to get out felt good.  Head is still floating due to chemo brain.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">This evening I still feel exhausted, muscles are weak.  I\u2019m glad for the little exercise today.  I just have to take each day as it comes, easier said than done.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Time for a good nights restful sleep.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Good night all, sleep well.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u2764\ufe0f\ud83d\ude4f\ud83c\udffd<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Thursday 15th May<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Good afternoon everyone, I hope you\u2019re well.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">I slept well, woke up tired, legs heavy, head floating with chemo brain.  Breakfast then full stretches, I seem to be getting out of breath doing basic exercise, this I know is because of the medication and will get better.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">I met T &amp; B for coffee and treats this morning, what\u2019s happened to the weather, no sun, just pure white cloud and cold breeze.  It was good to catch up, B just loves his treats.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">I\u2019m now home.  When I\u2019m walking I seem to be on one speed, no energy to increase my speed, like I\u2019m on auto pilot, weird feeling.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">It\u2019s been a restful evening, feeling exhausted and chemo brain is making my head feel floaty.  I\u2019ve felt like I could have slept all day but too tired to actually sleep.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">I need a good restful sleep, wake up refreshed with some energy.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Good night all, sleep well.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u2764\ufe0f\ud83d\ude4f\ud83c\udffd<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Friday 16th May<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Good evening everyone, I hope you\u2019ve had a good week.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">I slept well, woke up feeling tired, floaty head.  Breakfast and then full stretches, I just had to push myself, glad I did them.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">A few chores this morning and then just rest, the fatigue never really leaving me.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">This afternoon I went to the GP to have one of my childhood jabs.  I\u2019ve lost count of how many injections I\u2019ve had.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">This evening has been restful, energy level is sightly better but that level can just drop without warning, just crazy.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Time for bed, I\u2019m feeling exhausted and so sleepy.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Good night all, sleep well.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u2764\ufe0f\ud83d\ude4f\ud83c\udffd<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Saturday 17th May<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Good afternoon everyone, I hope you\u2019ve had a lazy morning.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">I slept well, still waking up feeling tired, less floaty feeling.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">No energy for stretches, mind was very willing but body put a dampener on things.  Breakfast, haircut, shower and out we went.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">It\u2019s been a lovely sunny day, just a cooling breeze.  We had a celebratory outdoor garden lunch at Dr N\u2019s parent\u2019s house.  It was nice to sit and enjoy the weather, Dr N cooked her signature healthy fish and chips.  Even enjoyed a short walk but it wasn\u2019t long before I got tired and out of breath.  I\u2019ve been feeling tired today, chemo brain and floaty feeling present but good to get out.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">This evening I\u2019m feeling exhausted, legs a little heavy and head foggy.  My body feels stiff and generally uncomfortable, this isn\u2019t me at all.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Time for bed and much needed sleep, I feel sleepy but maybe over tired.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Good night all, sleep well.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u2764\ufe0f\ud83d\ude4f\ud83c\udffd<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Sunday 18th May<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Good afternoon everyone, I hope your weekend is going great.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">I slept well, woke up less tired, chemo brain as usual, less floaty feeling.  No stretches, just breakfast, shower and then we ventured out for a walk, just local, close to home because I have no idea how long before fatigue kicks in.  I managed 3.5 miles with a couple of stops, I was getting tired after half way so I pushed myself to walk back home.  I\u2019m glad I did it and now home, I do feel the fatigue slowly kicking in so it\u2019s time to rest.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">The rest was much needed, this evening I have felt fatigued, energy levels have declined and the head floaty feeling has returned, still feeling positive.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Early night ready for a very early morning as it\u2019s treatment day.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Good night all, sleep well.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u2764\ufe0f\ud83d\ude4f\ud83c\udffd<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/tapaleisure.co.uk\/wp\/2024\/07\/02\/jesangs-myeloma-journey\/\">Click here for the homepage.<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Monday 12th May Good morning everyone, I hope you\u2019ve slept well. I slept well, I was asleep before 10pm, I was so tired. Woke up still tired but not as bad, less muscle ache but chemo brain is present. No time for stretches, just breakfast, shower and straight out of the door to the hospital. [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"pagelayer_contact_templates":[],"_pagelayer_content":"","footnotes":""},"categories":[6],"tags":[],"class_list":["post-1546","post","type-post","status-publish","format-standard","hentry","category-myeloma"],"_links":{"self":[{"href":"https:\/\/tapaleisure.co.uk\/wp\/wp-json\/wp\/v2\/posts\/1546","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/tapaleisure.co.uk\/wp\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/tapaleisure.co.uk\/wp\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/tapaleisure.co.uk\/wp\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/tapaleisure.co.uk\/wp\/wp-json\/wp\/v2\/comments?post=1546"}],"version-history":[{"count":2,"href":"https:\/\/tapaleisure.co.uk\/wp\/wp-json\/wp\/v2\/posts\/1546\/revisions"}],"predecessor-version":[{"id":2018,"href":"https:\/\/tapaleisure.co.uk\/wp\/wp-json\/wp\/v2\/posts\/1546\/revisions\/2018"}],"wp:attachment":[{"href":"https:\/\/tapaleisure.co.uk\/wp\/wp-json\/wp\/v2\/media?parent=1546"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/tapaleisure.co.uk\/wp\/wp-json\/wp\/v2\/categories?post=1546"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/tapaleisure.co.uk\/wp\/wp-json\/wp\/v2\/tags?post=1546"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}