Monday 16th June
Good morning everyone, I hope you’ve had a wonderful weekend.
I had a weird sleep, tossing and turning all night, I fell asleep just after 10.30pm and woke up at around 6.30am. The sleep has helped, less tired, muscles less tired and not achy, chemo brain is still hovering. Breakfast then I forced myself on my bike and pushed myself to cycle for 30 minutes, full stretches and I think I’ll mow the lawn before showering and resting.
A morning full of activity, I’m now feeling it, happy but tired in a good way, glad I really pushed myself and hopefully the start of more activities.
The evening has been restful, I haven’t been doing much, I feel a little tired, muscles the same, chemo brain is present, I just can’t seem to shake it yet. I thought I would have been in pain or even achy this evening but I’m feeling surprisingly good.
Time for bed, I’m trying to get to sleep by approx 10.30pm and wake up at 6.30am ish.
Good night all, sleep well.
❤️🙏🏽
Tuesday 17th June
Good afternoon everyone, I hope you’re well.
I had another night of tossing and turning with patches of good sleep, woke up feeling tired but more so from the activities yesterday. Legs feel tired. Chemo brain is present. Breakfast the full stretches, shower then a walk to meet T & B for coffee and treats. Good go catch up, both doing well, I’ve never seen a dog so happy to see me, he just knows he’s getting treats!!
I’ve rested today, glad I did because I think I need it.
It’s been a good day, this evening I’m feeling a little tired, same with muscles, both are improving which is excellent. Chemo brain doesn’t seem to shift as fast as I would like. Overall I’m feeling good and positive.
Time for bed, an early night seems to be better for me.
Good night all, sleep well.
❤️🙏🏽
Wednesday 18th June
Good morning everyone, I hope your week is going well.
Yet another night of tossing and turning, didn’t sleep too well, woke up feeling tired, muscles too, but a good tired, less from the medication and treatments, more from the activities. Breakfast then even though I’m feeling tired, I forced myself on my bike and managed 30 minutes, followed by full stretches. I’m glad I pushed myself, the exercise gave my muscles the workout they needed. Maybe I need to gently push myself with more activities but also making sure I do rest.
A few chores this morning and I had a Myeloma support group zoom meeting this afternoon. Everyone is unique and it’s nice to hear their stories, pick up advice, their experiences and everyone cares about everyone else.
I feel like I need to tell you all about my treatment so far and how it’s affecting my life now and forever therefore, I have written a summary which I will update after each treatment.
Click the link:
This evening has been restful, enjoying the lovely warm weather. I’m feeling a little tired, muscles are much better and I think chemo brain is shifting a little. I sense my body is slowly disposing the chemo drugs.
Time for bed, I have my appointment with the consultant tomorrow afternoon so I want to wake early and be ready for an indoor ride if I’m able to.
Good night all, sleep well.
❤️🙏🏽
Thursday 19th June
Good morning everyone, I hope you’re coping with the hot weather.
I slept better than the previous few days, woke up less tired, muscles better and chemo brain easing off but a small amount. Breakfast then a ride on my bike for 30 minutes, full stretches and shower. I’m so happy I pushed myself again today, that’s 3 days in a row of cycling, for me, that’s huge, I know it’s only 30 minutes but I will build on that.
My energy is slowly coming back, I’m feeling slightly better.
I have my appointment with the consultant this afternoon, this is so they can monitor me and also give me any updates about the trial.
Journey in took an hour, it’s so hot, AC could just about cope, temp hit 31c a few times. I’ve parked up and now a wait before I can check in.
I’ve now checked in, my name will appear on the big screen when they’re ready for me. I wonder if they’re running late???
Oh yeah, on the drive in, while I was waiting at a set of traffic lights, a pregnant woman walked by, she was wearing a summer outfit, trousers with a short top revealing her bump, a few steps behind was a man in trousers and a polo top hiding a belly bump which was bigger than the woman’s, yep I just had to laugh out loud!!
I’ve been summoned, up to the 4th floor. Weight taken, now a wait until I get called by the consultant.
Today I was seen by the main consultant and his number 2, they went through all of my test results, they are all good, nothing to worry about, only one is outstanding, once they have that, all results will be sent to Switzerland and I should get an answer in the next few days. I have to return again next Thursday to finalise the trial and I should know which trial treatment I will be getting. If it’s the injection then I will be admitted to hospital at the end of the month, I will be there for 10 days. This will be confirmed when I attend next Thursday’s appointment.
After the appointment, they took a gold bottle of blood and now I’m at the pharmacy waiting for my prescription to be ready.
Pharmacy didn’t take too long, usually the wait time is an hour.
Drive home was 1hr 20 minutes, that’s what happens when you leave during rush hour. I’m home and feeling tired, a quick dinner and rest.
I’m exhausted from the long day, bike ride and driving in the heat. Muscles feel good, chemo brain is around. Overall it’s been a good day, test results are excellent and the trial is getting nearer.
Time for bed, just need sleep.
Good night all, sleep well.
❤️🙏🏽
Friday 20th June
Good morning everyone, I hope you’re well and had a good week.
I slept well, woke up feeling like I needed more sleep. On average, I’m sleeping 7.5 hours, an early night is the answer. Breakfast, no energy to stretch then a shower. Breakfast has given me some energy so a walk around our local park with a game of pitch and putt, luckily the sun is hiding behind the clouds so it’s not shining directly on my head.
A nice 4 mile walk, that included a round of pitch and putt golf, yep, I won, I scored 27, Dr N 41, a vast improvement. Such good fun, very hot, a nice breeze. Dr N even received a losers trophy from the shop. An enjoyable afternoon. Now home, I’m feeling tired, a few niggles, I should have stretched this morning.
So hot today, rest of the afternoon and evening was restful, some gardening, even cleaned my golf clubs, all at a nice slow pace.
This evening I’m feeling a little tired, including muscles, chemo brain hasn’t gone yet. Overall I’m feeling good and positive.
Time for bed, before 11pm, I think I’ll sleep easily tonight.
Good night all, sleep well.
Saturday 21st June
Good afternoon everyone, I hope your weekend has started well.
I slept well, a little tired, muscles also tired, chemo brain is just not going and really puts a downer on my mood. It can only get better.
Breakfast, no time for stretches, shower and we went out for a few hours to beat the sun. Our first destination was Olympia to an exhibition about allergy and free from food, we got there very early to avoid the crowds and our plan was spot on, we did a circuit of all the stalls, got the information and products we liked and as the rush was starting, we departed. It was beneficial for us, we found a few new foods which is good as I can’t eat wheat and most flours except oat and chick pea because they all bloat me and trigger my IBS.
From there we went for a walk along the Thames near Hammersmith bridge, found a nice beer garden overlooking the Thames and had lunch in the shade.
The temperature was rising so it was time to head home to rest.
I’m feeling exhausted but in a good way, muscles are tired and chemo brain is just there.
A restful evening is always good. It was nice to get out today even though it was very hot, just a change of scenery.
I’m feeling tired but good, yes I have thoughts about the trial but my positivity overpowers the negativity. This week I’ll find out what happens.
Time for bed, a good sleep and no rush to wake up, I feel like a ride on my trainer might be on the cards for tomorrow.
Good night all, sleep well.
❤️🙏🏽
Sunday 22nd June
Good afternoon everyone, I hope your weekend is going well.
I slept well, even managed a couple of extra hours sleep. Woke up a little tired, breakfast then I pushed myself to ride my bike, I managed 30 minutes at a higher pace, then full stretches, haircut and shower. I’m feeling good, a little tired, muscles are glad they had a workout, chemo brain is here, for some reason I just can’t shift it yet.
While looking at some articles about Myeloma, I came across this:
The afternoon and evening have been restful, I feel like there’s something bugging me but I have no idea what, I’m sure all will be explained soon enough.
It’s been 173 days since my stem cell transplant, doesn’t time fly!! I wouldn’t say those 173 days have been a stroll in the park but I faced all the challenges along the way, with Dr N by my side, we conquered them all.
I’m feeling good, tired but not too bad. Overall I’m positive.
Time for bed, I feel like I need sleep.
Good night all, sleep well.
❤️🙏🏽