Monday 23rd June

Good afternoon everyone, I hope you had a fab weekend.

I slept well, woke up a little tired, so I pushed myself so breakfast, bike ride, full stretches, and then gardening, yep, even though I did feel tired after the bike ride, I wanted to push myself a little more, turned out a little more was 2.5 hours in the garden, even surprised myself. I’m now showered and resting. I do feel tired and have realised that my strength has declined from all of the treatment and lack of exercise, it will come back as I push myself more and more, energy levels are slowly increasing. After today’s activities, let’s see how my body reacts as the day goes on.

Afternoon and evening have been pleasant, a good rest, I feel a little tired. body and muscles feel the same, though not as bad as I thought I would, which means my fitness and stamina is increasing, the stretching is helping my body and muscles, so signs are good.

Time for bed, a good restful sleep ready for a new day.

Good night all, sleep well.

❤️🙏🏽

Tuesday 24th June

Good afternoon everyone, I hope you’re well.

I slept well, fell asleep before 11pm. Woke up feeling tired, more due to yesterday’s activity. Breakfast followed by a bike ride, I pushed myself and managed 30 minutes, full stretches, a quick snack and I headed to the garden and did 1.5 hours of gardening, not bad at all, the weather was just right, not hot at all, just comfortable. Shower and we headed out to have lunch with Dr N’s parents and uncle and aunt to celebrate her father’s landmark birthday. Thank god for the lovely weather and outdoor dining.

It’s been a lovely afternoon, eating, drinking, talking and catching up, it’s been so long.

Evening has come and we’re home. After a fun filled day, I’m feeling tired, more so from all of the activities rather than the treatments. Over 2 days, I’ve been on my bike trainer for an hour, gardening for 4 hours, I’m so glad I pushed myself, it’s like my body is waking up from treatment slumber. I feel good and more positive.

Time for bed, feeling tired and need sleep.

Good night all, sleep well.

❤️🙏🏽

Wednesday 25th June

Good afternoon everyone, I hope your week is going well.

I didn’t sleep too well, eventually fell asleep after 2am, I blame the masala chai which wasn’t decaf!! Woke up feeling tired so no stretches, breakfast, shower and a total rest day.

Completed a few in house chores this morning, a small lunch and now rest. Muscles are aching which I’m sure is down to all of the exercises I’ve been doing. Generally I feel good.

A year ago today, I was diagnosed with Multiple Myeloma.

Just resting is good for you, that’s exactly what I did this afternoon and evening, I needed it.

Time for bed, early rise tomorrow, I have my appointment with the consultant to find out about the trial and which treatment I will receive.

Good night all, sleep well.

❤️🙏🏽

Thursday 26th June

Good afternoon everyone, I hope you’re well.

I slept well, woke up tired, breakfast then I pushed myself to have a bike ride, I managed 30 minutes which was excellent because I was very tired, full stretches, shower and after a quick lunch, I’m about to leave for my appointment.

Journey in wasn’t too bad, didn’t expect the rain, still muggy. Found parking outside the hospital which was a bonus. I’m early for the appointment so we’ll relax. I’ve checked in.

It’s time, my name has appeared on the big board and I’ve been summoned to the 4th floor.

As soon as I’ve sat down, o was called so they could record my weight, I knew I had too much lunch!!! Another wait to be called by the consultant.

While waiting I’ve been called to have my bp and heart rate recorded, I was called again so they could take blood, only 6 tubes today.

A busy day for the consultant, he was running 1.5 hours late which is totally understandable. The first thing he said to me was that I will be on the trial and the treatment will be a combination of the new drug by injection and the current drug by tablet, he then ran through all of the side effects and how the trial will start. I will be admitted to hospital on Sunday for 10 days, treatment starts on Monday and I’ve been told I will be very bored for the period I will be in hospital.

On Monday I will be given a small dose of the new drug by injection, I will then be monitored because there’s a good chance I will get a high temperature as my immune system will fight this new drug, a couple of days later I will be given a slightly higher dose as my body gets used to the drug, again I will be closely monitored and if all goes well, after a couple of days I will be given a full dose of the drug, I will be monitored for 48 hours and if all goes well, I will be sent home. I will then receive weekly injections, and the other drug, by way of tablet, will start on a daily basis.

Drive home was full of traffic, journey time was over an hour. Now home and I’m exhausted, a quick dinner and just want to relax now.

What a long day, so much to take in during my appointment, Dr N was alert and digested it all. I’ll be packing over the next couple of days, ready for the next challenge.

I’m feeling exhausted, more so from the activities over the last few days, I think I’m running on nearly empty, chemo brain is slowly easing.

Overall I’m happy, tired, happy that the tiredness is from exercise and not any medication. I’m positive and ready for what’s to come next.

Time for bed, no need to wake up early, I do have another appointment tomorrow afternoon but nothing to be concerned about.

Good night all, sleep well.

❤️🙏🏽

Friday 27th June

Good morning everyone, I hope you’ve had a good week.

I slept well, woke up less tired, breakfast and today I decided to have a day of no exercise, just rest.

I have another appointment at the hospital, this time it’s with the dermatologist as I have a few dry patches which I need checking to make sure they aren’t cancerous.

Journey in took over an hour, so much traffic. I’m early, always early, finding parking can sometimes be a problem, today I’ve found a spot further down the road.

I’ve feeling rested, yesterday’s appointment is still sinking in, I’m on the verge of trialling a drug which is usually used much later in the process, usually when the cancer reappears so the fact I’ll be using it now is huge, along side the current remission tablet can only mean I have the best current treatment available for remission.

I’ve checked in, no idea how long the delay is.

They were running about 30 minutes late which isn’t too bad, dry patches have been checked, nothing to worry about, not cancerous which is good news, to be sure, scrapings were taken from a patch at the top back of my head for further investigation. I’m now at the main hospital pharmacy waiting for an anti fungal cream which the doctor has prescribed. Another wait.

The wait wasn’t too long, got the prescription and now a drive home.

Talk about traffic, journey time was 1hr 20 minutes, crazy, I’m home and ready for some food.

I’ve had a nice rest this evening, I’m feeling tired, glad I didn’t exercise.

Time for bed, have to finish packing tomorrow and maybe a ride and walk could be on the cards, let’s see what the day brings.

Good night all, sleep well.

❤️🙏🏽

Saturday 28th June

Good afternoon everyone, I hope you’re well.

I slept well, woke up feeling tired, I can’t seem to shake the tiredness and chemo brain at the moment, I suppose it’s just a waiting game.

Breakfast was followed by a bike ride, I managed 30 minutes at a good pace, full stretches, shower then a few chores, completed my packing and then some rest.

I feeling good but tired, apprehensive about tomorrow, it’s just the unknown though I’m ready for it.

What a lovely day, very hot, nice breeze, good to relax, didn’t fancy a walk, a few things to do at home. I have rested, much needed and feel better for it.

Time for bed, it could be a busy day tomorrow, all depends on what time I get the call from the hospital letting me know my bed is ready. As well as that, and like a few days ago, they would like 24 hour urine sample starting from when I wake up and continues while I’m at the hospital. All fun!!

Good night all, sleep well.

❤️🙏🏽

Sunday 29th June

Good afternoon everyone, I hope your weekend is going well. I slept well, even managed an extra hour. Woke up tired, same with muscles but not as bad, chemo brain is around. Breakfast then I pushed myself to ride my bike because I won’t be able to do any form of exercise while at hospital. I managed 30 minutes, that’s 5 rides in 7 days!! Followed by full stretches, haircut, shower, while in the shower the hospital called to say they haven’t got a bed yet and they’ll call again soon, nice to get an update.

I’m feeling good, positive, so glad I exercised, in my mind, I’ve done everything I can to be as fit as I can before I go into hospital so bring it on!!

Hospital called this morning to say currently there are no beds available but they’ll call later with an update.

Still at home, no phone call yet, apparently they can call much later in the day, I’ve been ready all day. I’ve drank over 4.5 litres of water, I have over 3 litres (1 full container and 1 just started) urine sample for the nurse, I still have to add more until 8.30am tomorrow morning.

We called the bed coordinator and she confirms that there are no beds available and I will not be admitted today. I will definitely be admitted tomorrow, I should get a call from them in the morning, if not, I should call them to make sure I have a bed.

Time for bed, it’s very hot, windows are open, a restful slew to be ready for a journey to the hospital, ‘check-in’ to my room and get ready for treatment to start.

Good night all, sleep well.

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My treatment journey so far.