Monday 2nd June

Good morning everyone, I hope you’ve had a wonderful weekend.

I slept well, actually managed to fall asleep just after 10pm, woke up before 5am. Feeling tired, muscles are better but weak, and same old with chemo brain.

No time for stretches, breakfast, shower, pack my bag and I was on my way to the hospital, more traffic than usual today, took me just under an hour to get in.

I’m early, bloods first, tablets then check in for chemo.

Bloods done, tablets taken, too early for chemo check in.

All checked in, usual bp and weight soon then more waiting until a nurse is ready for me.

Checks done, bp 117/75 sitting, 111/75 standing, the nurse is happy.

Injection given and I’m all done by 10am.

Treatment 8 of 8 completed.

Took me about an hour to get home.

I’m feeling exhausted so it’s time to rest.

Well, the steroids haven’t given me a boost, I’ve been exhausted all day, part of the reason has to be the car washing yesterday, and also the treatment today. My body is so much more weaker these days, I know it could have been much worse, I also know that I will be getting stronger very soon.

I haven’t been able to do anything most of today, couldn’t even have a nap, exhausted and restless.

Time for bed, I need restful sleep, no need for an early start.

Good night all, sleep well.

❤️🙏🏽

Tuesday 3rd June

Good morning everyone, I hope you’re well.

I slept well, woke up exhausted, hardly any energy, chemo brain well and truly in control.

No energy for stretches, breakfast, shower and on my way to the dentist, a quick checkup before my next round of treatment.

What a day, totally exhausted, legs so very heavy, no energy at all and chemo brain as well and it’s only Tuesday, I’ve never been this bad a day after treatment. Even walking upstairs was difficult.

I did manage some work on my laptop, nothing else was achieved, I couldn’t even have a nap, just too restless.

It’s just one of those days where I just have to plod along, head and body both in unison saying no thanks to any kind of activity.

Time for bed, a good sleep should give me energy tomorrow.

Good night all, sleep well.

❤️🙏🏽

Wednesday 4th June

Good afternoon everyone, I hope your week is going well.

I slept well, woke up tired, not as bad as yesterday, all muscles are so low on energy, chemo brain is sometimes joined by floaty. Breakfast then full stretches, I just had to push myself and do some form of exercise, shower and now just resting. I really want to do things but I just haven’t got the energy or motivation, I know it will pass and I need to be patient.

Another day of just resting, I’ve been slightly better than yesterday.

I have to admit, the last few days have been extremely tough mentally, physically and emotionally, with fatigue on top of all that meant I was stuck indoors and couldn’t even venture out for a walk, yep it’s been tough. I feel better this evening, more positive. Still tired, muscles have a tad more energy, chemo brain hasn’t changed at all.

Time for bed, restful sleep always helps.

Good night all, sleep well.

❤️🙏🏽

Thursday 5th June

Good morning everyone, I hope you’re well.

I slept well, woke up less tired, still hardly any energy and chemo brain still here. I had my last chemo tablets last night so that should ease chemo brain. Full stretches then breakfast, shower and straight out to my appointment with the consultant and also the trials team to see how I’m doing and so they can explain the next few steps.

Journey in was approx 1 hour, such horrible weather. We’re early we’ll just hang about, a coffee and some lunch I think.

A nice tofu salad, decaf coffee, dessert later. I’ve checked in, now waiting for my name to appear on the big screen. It’s a busy hospital today, I don’t think I’ve seen so many people in reception.

I’m feeling better than yesterday, tiredness is still hanging in there, more positive and ready for my appointment.

Name appeared, straight up to the 4th floor, as usual, my weight is taken and even before I had time to tie up my laces, I was called in by the consultant. He ran through the trial consent form which I duly signed, we met my trial contact nurse, the consultant did a quick body check and everything is fine. The next step is the bone marrow biopsy, ECG and bloods on Monday, they have also requested 24 hour urine collection sample as part of the eligibility process, I will see the consultant again in 2 weeks time. The appointment lasted 20 minutes, very quick especially as he had to answer all of our questions. Now we have to wait at the pharmacy for my prescription to be ready, there’s a delay of over an hour, I can’t remember a time where there hasn’t been a delay at the pharmacy!!

Tablets received, we’re on our way home, journey time is 1hr 15 minutes, busy time to leave and the wet weather.

We’re home, I’m tired, feeling good, time to rest.

The evening has been pleasant, nice and relaxed, still tired, muscles feel better, more energy than the last few days and overall so much more positive.

Time for bed, it’s been a long day, ready for the next step.

Good night all, sleep well.

❤️🙏🏽

Friday 6th June

Good afternoon everyone, I hope your week is going well.

I slept well, woke up tired with low energy, I feel as if things are improving but very slowly, I have to wait for the chemo to work through my body. Breakfast then full stretches, shower, some work on my laptop and then just resting, I’ve been tempted to go for a walk but the lack of energy, strong breeze and not knowing when it’s going to rain again are all putting me off, I’ll assess again after lunch.

Today was a total rest day, I didn’t venture out, it was cold and breezy, I wasn’t feeling right either so the rest really helped.

This evening I’m feeling tired, better than yesterday, muscles better than yesterday, legs still feel heavy, chemo brain is the same, overall I do feel a positive change.

Time for bed, a good sleep will refresh me.

Good night all, sleep well.

❤️🙏🏽

Saturday 7th June

Good morning everyone, I hope you’ve had a good week.

I slept well, woke up less tired, lacking energy and chemo brain getting itchy feet. I do feel things are changing for the better. Breakfast then full stretches, haircut and shower. Looks like it’s going to rain so another washout day. I’m still not mixing with people indoors so I’m extra careful and very cautious.

A total restful day, I’m glad I didn’t do much, I needed the rest, tiredness is much better, muscles are beginning to get more energy and chemo brain is still packing. Overall the signs are good and I’m feeling positive.

The power of a small chemo tablet, smaller than a paracetamol tablet, is amazing, how it takes over the whole body, it’s scary.

Now it’s time for bed, a nice sleep, ready for a fresh day tomorrow.

Good night all, sleep well.

❤️🙏🏽

Sunday 8th June

Good afternoon everyone, I hope your weekend is going well.

I slept well, woke up less tired, slightly more energy, muscles felt better but chemo brain is rather slow at moving. From this morning, I have to pee in a container for 24 hours, last pee will be in the morning. I’ll take the container with me tomorrow to hand in at my appointment.

Breakfast and shower, no stretches, instead we went for a walk, managed 3.3 miles which is a very good achievement considering how I’ve recently been. I do feel exhausted now we’re back home, but a good start which I can build on.

It’s been a good day, this evening I’m feeling tired, muscles are not achy, chemo brain/floaty head is present but not as bad as before. The tiredness should ease off as the week goes on.

Early night for an early rise, I have my appointment tomorrow, bone marrow biopsy, ecg and bloods, all to see if I’m eligible for the trial. Not forgetting the 24 hour pee container, I’m drinking over 3 litres of liquid a day so the container is nearly full!!! 😂😂

Good night all, sleep well.

❤️🙏🏽

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