Monday 26th May
Good morning everyone, I hope you’re well.
I slept well, woke up extra early, tired, less muscle ache but usual chemo brain. No time for stretches, just breakfast, shower and out. We made good time to get to the hospital, hardly any traffic.
Parked up and checked in, tablets taken and now I wait to be called.
I was called up early today, my appointment was scheduled for 9am and I’m called up at 8.30am. Bloods taken, they will be sent off and I have to wait for the results to come back so the nurse can make sure my readings are okay for the treatment.
Bp and temperature taken, all excellent, 116/70 and 60bpm.
Just found this, exactly shows how I feel at time:
All results are good, ready for the 2 injections.
Now that wasn’t too bad, just hate the part where they insert the needle.
Everything was completed by 10.15am, so all done in 2 hours from when we got there.
Rather than go straight home, we headed to Kings X to play some table tennis and yep, I got truly beaten by Dr N, my excuse is that she’s a one time county youth champion and her skills are still evident. Nice to just have a play.
A cup of Indian tea and off we set for home.
We’ve reached home, a little traffic, about 50 minutes journey time. I’m feeling tired, legs are getting heavy, we may go for a walk, all depends on whether I’ll be up for it in about an hour. The weather doesn’t look too inviting either.
Treatment number 7 is complete, just 1 more to go.
This evening has been an up and down affair, exhaustion came and went several times, chemo brain was permanent, floaty head also came and went. Most of that is probably due to the very early start, the steroids gave me the up times.
I’m feeling good, positive and exciting apprehension is slowly creeping in because next week I have an appointment with my consultant to discuss the trial and the next few steps, I’m ready for it.
Time for bed, will the steroids let my exhausted body sleep, time will tell.
Good night all, sleep well.
❤️🙏🏽
Tuesday 27th May
Good afternoon everyone, I hope your week has started well.
I slept well after eventually falling asleep after 1am with lots of tossing and turning. Woke up feeling exhausted, legs feel heavy and chemo brain is alive and kicking. After breakfast, I pushed myself to do full stretches, shower and straight onto my laptop for a few work issues to sort out.
This afternoon looks like a washout so it’s time to relax, the steroids are leaving my system so I’ll be reacting to that today.
I’ve been exhausted today, not much energy and chemo brain always hovering. This afternoon and evening has been just resting, I couldn’t even have a nap.
Time for some much needed sleep, no need to wake up early but my body automatic alarm just loves waking up at around 6am if not earlier.
Good night all, sleep well.
❤️🙏🏽
Wednesday 28th May
Good morning everyone, I hope you’re well.
I slept well, woke up fatigued, my legs feel so heavy and muscles have zero energy. Breakfast then full stretches which was a struggle, shower then rest. I really would have liked to go for a walk but I just can’t manage it, mind really wants to but body says no, I feel drained.
A very short power nap did help this afternoon but today I’ve really felt fatigue, muscle ache and lack of energy, my legs have felt heavy all day, the first few steps walking after getting up are fine but then the heaviness kicks in and I have to slow down and take things easy.
Tomorrow is a new day, time to sleep.
Good night all, sleep well.
❤️🙏🏽
Thursday 29th May
Good afternoon, I hope your week is going well.
I slept well, woke up less fatigued, legs still heavy and chemo brain still with me. Breakfast then full stretches, again this was a struggle but I pushed myself, after my shower I had a choice of either going for a walk or a trip to the local golf range. I opted for the range because of how my legs are feeling. Only 25 balls, I remember the days when I would hit over 100 balls, 25 was more than enough today, walking back to the car, I could really feel the heaviness in my legs and the oncoming of fatigue.
Now home, it’s time to rest, yep, fatigue has arrived. Legs feel fine when I’m sitting, they just don’t want to be used. Muscles are weak but no on empty.
Today I’ve felt low both physically and mentally. The fatigue is a factor, I also read trial information given to me by the consultant which explains more about the trial I will hopefully enter. It’s a great trial but it also iterates how my life will be, which will also affect Dr N. Chemo brain doesn’t help when digesting the information and I struggle seeing the positives of which there are so many. I know my views will change and be much more positive once the chemo ends, it’s just one of those days today, everyone has them.
Tomorrow is a new day full of new adventures.
Good night all, sleep well.
❤️🙏🏽
Friday 30th May
Good afternoon everyone, I hope you’re ready for the weekend.
I slept well, woke up a bit achy due to the golf session, less fatigued, chemo brain still with me. Mentally I do feel much better. Breakfast then full stretches, shower and we went for a walk to our local park where we ended up playing pitch and putt. The walk was a struggle but I just had to push myself, playing golf did give me something else to focus on. Yes I won, Dr N came a distant second. Scores after 9 holes of a par 3 course were 33 for me, 55 for Dr N. The walk home was a little bit of a struggle but I’m glad I pushed myself. The experts say I should listen to my body, I do but I also need to listen to my head because just listening to my body would make me lazy and rather than pushing myself, I would be saying I’m tired and remain sitting on the sofa watching tv and get into a spiral of despair. I’m doing what I feel is right.
Home now and time to recover.
A nice restful evening, hardly any aches or pains after the golf, just a little leg heaviness, and fatigue. I’m feeling good.
Time for bed, I do feel exhausted but in a good way. Everyday sure is totally unique on this journey.
Good night all, sleep well.
❤️❤️
Saturday 31st May
Good afternoon everyone, I hope you’ve had a lovely day.
I slept well, woke up feeling tired, not fatigued, muscles are weak but not too bad, chemo brain didn’t want a weekend away. Full stretches before breakfast, shower then we went to Dr N’s parents house for a garden soirée. It’s been a lovely afternoon having a catch-up with their guests and perfect weather, not too hot, a nice breeze and non stop amazing food.
This evening I’m feeling tired, muscles are still lacking energy and generally I’m feeling good, tiredness has been with me all day.
Time for a good sleep, no need to wake up early!!!
Good night all, sleep well.
❤️🙏🏽
Sunday 1st June
Good afternoon everyone, I hope your weekend is going well.
I slept well, could have done with a couple more hours sleep. Woke up feeling tired, muscles still weak and chemo brain present. No stretches, I wasn’t in the mood, breakfast and then I washed both of our cars, a good 3+ hours of exercise. Both cars are sparkling, no energy to vacuum the interior. After I packed everything away, a quick shower then lunch. Totally exhausted now, muscles are on empty and an afternoon nap could well be on the cards.
I’m glad I pushed myself today, rather than just sitting around, keeping active was fun. Let’s see how the next few hours affect me.
Today has been a good day, this evening I’m feeling exhausted, muscles are weak but not empty, chemo brain and floaty head are home and active. In addition, I’ve also developed an eye stye on my left eye, the same happened the last time I was on chemo, eye drops and warm compresses will fix that.
Early night for a very early rise, it’s treatment day tomorrow.
Good night all, sleep well.
❤️🙏🏽