Monday 19th May
Good morning, I hope you’ve had a good weekend.
I slept well, woke up bright and early, no time for stretches, breakfast, shower and straight out to the hospital. A little bit of traffic so not too bad, took me about 50 minutes.
I’m feeling tired, chemo brain is still present, just less floaty.
Treatment number 6 today, 2 to go.
Bloods first followed by tablets then chemo.
Bloods completed, now a wait for chemo.
Checked in for chemo, no idea if there’s a delay today, now I wait to be called by a nurse.
I’ve been called, weight and BP taken, I’m healthy!! They’ve put in a cannula ready for my next treatment after the chemo injection.
Injection given, luckily for me they’re even going to give me the next treatment (bone strengthening drip) so I won’t have to go to the other department and wait.
I’m all done, not bad at all, arrived at 7.45am and leaving at 9.30am!!
Only took 50 minutes to get home. I’m feeling tired, probably because of the very early morning. Time to rest for now.
As part of the trial I’m entering for remission, I’ve been given a date for my bone marrow biopsy, Monday 9th June. The results will determine if all systems are go.
The afternoon and evening was spent resting, I’ve felt tired all day with chemo brain present all day, but because of the steroids, there was no chance of a daytime nap. I’m feeling positive and good.
Time for sleep, if the steroids allow me.
Good night all, sleep well.
❤️🙏🏽
Tuesday 20th May
Good afternoon everyone, I hope you’re well.
I eventually fell asleep after midnight, I slept well. Breakfast then full stretches, not sure where the energy came from, probably the steroids. Chemo brain is present.
I met T & B for coffee and treats, a nice sunny day to sit outside and have a catch up. I walked there and back, my legs do feel heavy and I’m a little tired, due to lack of any activity for the last few days.
Today has been a total roller coaster day, felt good this morning, by this evening fatigue has truly kicked in, everything is a chore and I just haven’t got the strength.
I just need to sleep now, chemo brain and the lack of energy do not help.
Good night all, sleep well.
❤️🙏🏽
Wednesday 21st May
Good afternoon everyone, I hope your week is going well.
I slept well, woke up feeling exhausted and could have slept for a few hours more.
No energy for stretches, just breakfast, shower and then a few chores to quickly rush back because I had 2 online meetings to attend. The first one was about cancer and diet which was educational and I’m glad to say my current diet is spot on.
The second meeting was the monthly myeloma support group where I get to meet other myeloma patients in various stages of treatment, again it was good to catch up and also get advice about things.
Now I can relax, I’m feeling exhausted, legs feel heavy and body feels stiff.
Another roller coaster day, I’m still feeling positive and happy.
Time for bed and a restful sleep.
Good night all, sleep well.
❤️🙏🏽
Thursday 22nd May
Good afternoon everyone, I hope you’re well.
I slept well, woke up less tired and with a little more energy. Breakfast then full stretches, shower and straight out to complete a couple of chores.
This afternoon I’m feeling less tired, legs still feel a little heavy, chemo brain is present, I do feel like I could sleep, even go for a walk but I don’t want to push it because I know I’ll hit rock bottom by the evening of if I do.
I’m glad I rested, another roller coaster afternoon and evening, floaty head is back. This evening I’m feeling exhausted, muscles feel tired and energy levels are on the low side. Mind says yes but body is still not playing ball.
Time for a restful sleep to wake up refreshed.
Good night all, sleep well.
❤️🙏🏽
Friday 23rd May
Good afternoon everyone, I hope you’re ready for the weekend.
I slept well, had to wake up early as I had an appointment at the hospital today. No stretches, breakfast, shower and we were out, a little traffic on the way in but not too bad.
The appointment today was for complimentary therapy which in this case was for a massage. I can no longer have deep tissue or sports massages due to the myeloma so today the massage was carried out by someone who has been trained in oncology therapy treatments. It was very effective and much needed.
We’re now home, I’m feeling so exhausted and relaxed so it’s going to be an evening of relaxation. Muscles are still on empty and chemo brain still hasn’t decided to go away on a holiday.
I’m glad to say it’s been a good day despite feeling exhausted and chemo brain, muscles are still on empty but ache less. Feeling positive and happy.
Time for sleep and no need to get up early!!!
Good night all, sleep well.
❤️🙏🏽
Saturday 24th May
Good afternoon everyone, I hope you’ve had a good week.
I slept well, woke up feeling tired and in need of more sleep. Breakfast then full stretches, haircut and we went for a walk. I didn’t think I would be able to walk much but I wanted to push myself, we ended up covering a distance of 4.3 miles, we did 3 miles yesterday so that’s really good going. We’re back home, I do feel tired which is more down to the lack of exercise. Energy levels are still low and chemo brain is present.
I did have a quick nap this afternoon, it did help, this evening I’m feeling exhausted, muscles still low on energy, chemo brain still here mixed with a little floaty feeling. No idea how I managed all the walking but glad I pushed myself and good to know my fitness hasn’t totally disappeared, something to build on.
Overall I’m feeling positive.
An early start tomorrow so a good nights sleep is needed.
Good night all, sleep well.
❤️🙏🏽
Sunday 25th May
Good afternoon everyone, I hope your weekend is going well.
I slept well, woke up early feeling tired, no time for stretches, breakfast, shower and straight out to do some work, from there we went to our lock park to try lawn bowls, a lovely outdoor game which is ideal for me as it’s outdoor, fresh air and I’m not in a busy indoor environment. I may join the club once I know more about my next phase of treatment. Me and Dr N had a competition, she thought she had won but I rolled a beautiful bowl which beat her effort.
As we were in the park, we went for a short walk, we were both feeling the after effects of the last couple of days and all the walking.
Back at home we had lunch, fell asleep on the sofa and now it’s a case of rest and relaxation to be ready for my treatment tomorrow.
I’m feeling tired, muscles are a little heavy, chemo brain hasn’t decided to go away for the long weekend.
A nice lazy evening, still feeling exhausted, early night for an early start. I have treatment number 7 tomorrow.
I need a good restful sleep to be ready for 2 injections tomorrow.
Good night all, sleep well.
❤️🙏🏽