(Monday 20th January - Friday 26th January)

Day +20

Good afternoon all, I hope your day is going well.

I slept well but yet again woke up totally exhausted.

I did manage some simple stretches, my flexibility has decreased which I know will come back.

After breakfast, I felt very tired so I went back to bed for an hour. I can only assume that my body is working non stop internally and when I eat food, my body slows down even further so it can also digest whatever I eat hence I feel even more tired.

I had an appointment at the hospital today to give blood. It took us 55 minutes to get there, the appointment took 10 minutes and then another 55 minutes to get home.

We did receive a call from my nurse specialist who said that I’m still in the very early stages of my recovery and she expects me to be very tired at least for the next 3 weeks, but everyone is different so I may see changes quicker, or later. Time will tell.

We’re home now and an afternoon of rest awaits.

I’ve been resting all evening yet still absolutely exhausted.

Time for bed and let my body repair itself.

Good night all, sleep well.

❤️🙏🏽

Day +21

Good afternoon everyone, I hope you’re well.

I had a good sleep, the best in a long time. I was still tired when I woke up.

After breakfast and a shower, I’ve just rested all day.

I do feel slightly better than yesterday but still so tired.

A nice little sleep this afternoon, the more rest the better.

I’ve ate well today, lots of fruit and vegetables as well.

This evening I’m feeling extremely tired, I’m walking very slowly. Walking upstairs didn’t make me as out of breath as I’ve felt before so slight improvement there but my body is tired, all of my muscles are aching. Even though I feel extremely tired, I would class today as a good day, I know I’ve felt worse only a few days ago. Yep, very weird.

Time for bed and restful sleep.

Good night all, sleep well.

❤️🙏🏽

Day +22

Good morning all, I hope your week is going well.

I slept well, still tired.

Good news, my blood results are showing all levels are rising which is fantastic. My specialist nurse will be calling me on Friday to give me their verdict.

Breakfast eaten, a quick shower and then I’ll see how I feel.

Another day of rest, a late afternoon nap thrown in as well.

Overall I feel I’m making progress albeit very slow but I feel I’m getting stronger each day.

Time for bed, early night.

Good night all, sleep well.

❤️🙏🏽

Day +23

Good morning all, I hope your day is going well.

I slept well, still tired and today I’m also feeling spaced out, no idea why.

Breakfast eaten and showered, today I’m feeling a little less tired but it’s still early.

Another day of rest, see if this spaced out feeling goes away.

Another day of not being able to taste anything I eat. Water tastes metallic, warm milky drinks seem palatable, texture of food allows me to use my imagination of how food tastes but I’m just eating for the nutritional benefits.

I’ve felt spaced out for most of the day, not a good feeling, I’m not sure what the trigger was this evening but it’s been a mentally tough, thank god me and Dr N talk daily. It’s hard for both of us, much harder for me because it’s not always easy to explain to Dr N what’s going on in my head, we have totally bare, no holds barred chats and although that helps, I have to keep reminding myself that it’s not even 4 weeks since my transplant and I need to be patient, I need to be a slob but as Dr N would tell you, that’s not me. We’re getting there and your support really lifts us, thank you 🙏🏽.

Time for bed, and sleep, or at least I’ll try, watching tv stops me thinking when I’m feeling low. Each day is a rollercoaster ride.

Good night all, sleep well.

❤️🙏🏽

Day +24

Good afternoon all, it’s the end of the week.

I slept well, feeling mentally so much better. Still tired which is expected.

Breakfast and showered.

I had a call from my clinical nurse specialist to see how I’m doing. They’re happy with my blood results, all levels are as expected. I was asked all the usual questions like if I’m eating properly, drinking enough and visiting the bathroom for both 1 and 2’s. Overall I’m making very good progress considering it’s less than 4 weeks since my transplant, many others who have had a SCT are still in hospital and get discharged after 4 weeks. I should start seeing a difference in the next 2-4 weeks.

From the start of my SCT and now, my weight has decreased by approximately 3.5kg, I do feel better for it and I know I’ll be much fitter once my energy comes back.

It’s been a relaxing day, we ate a big lunch and after an hour we both fell asleep while watching tv, just shows how tired we get, the nurse did confirm that I will get more tired after meals because my body is also processing the food as well as repairing itself. Sleep was indeed needed.

I’m feeling better this evening, still tired but am making progress.

Time for bed, sleep is truly helping.

Good night all, sleep well.

❤️🙏🏽

Day +25

Good evening everyone, I hope your weekend is going well.

I slept well, feeling tired.

Today has been a restful day, my muscles are still cramping but that’s expected. I’m still getting tired and out of breath walking to the kitchen or upstairs but recovery time is getting less so progress is being made.

It’s been a good day but I still can’t taste any food or drink and have to flavour water.

It’s been another uneventful day but always good to rest.

Time for bed.

Good night all, sleep well.

❤️🙏🏽

Day +26

Good evening everyone, I hope you’ve had a good weekend.

Today is the end of week 4 since my SCT.

I feel as if I’m getting stronger each day but still have a long journey ahead of me.

I’ve been a little more active today but I’m feeling much more tired this evening. overall I feel good, I think it’ll be a rest day tomorrow.

Time for bed and much needed sleep.

Good night all, sleep well.

❤️🙏🏽

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