Wednesday 11th December
Good evening all, I hope you’re well.
I slept well but still not totally recovered from the previous couple of days.
I have rested all day, just didn’t feel up to any exercise. The side effects from the injections are nearly cleared from my system, I think I’ll be ready for activity tomorrow.
I haven’t even stepped out of the house today, a total rest day.
I’m feeling happy and good today although a little tired. I’m just glad everything went well yesterday.
More good news, I have received my results from the PET scan last month and I’m glad to say that my bones are healthy and healing well.
By this evening, I can say I have a little more energy, the tiredness is slowly lifting, as are the other symptoms from the injections.
It’s been a restful evening, much needed. I’m feeling much better and happy with my progress.
Time for bed and another good nights sleep.
Good night all, sleep well.
❤️🙏🏽
Thursday 12th December
Good evening everyone, I hope you had a lovey day.
I didn’t sleep too well, still feeling the effects of the injections. They started easing off this afternoon but stomach still doesn’t feel right.
Had a few chores to sort out this afternoon, all completed, and just rest this evening. It’s been raining all day, not nice to be out in it.
Im hoping to go for a walk tomorrow, I don’t think I’ll be feeling well to ride my bike, I just need to start exercising, to get ready for the transplant recovery.
Time for bed, sleep is always good but body clock loves a 6am wake up.
Good night all, sleep well.
❤️🙏🏽
Friday 13th December
Good evening all, I hope you’re well.
I didn’t sleep too well lastnight, so not totally refreshed today.
Another gloomy day, drizzle all day, well, I call it drizzle whereas the weather people and apps call it mist.
We still went for a walk, all wrapped up and ready for the cold weather. A total of 6.7 miles, not bad but I did suffer, the bones in my legs and lower back did start aching after mile 3 but I pushed through and so glad I did. The mist did get us wet, hence it’s drizzle!!! The drugs are still in my body but the effects are lessening.
This evening we rested. I supplied a recipe to Dr N and she cooked a lovely meal, mackerel accompanied with a whole roasted cauliflower covered with a herb and spice rub, with a tahini based dressing and herb topping. Absolutely delicious!!!
Still have daily thoughts about my upcoming STC, good thing is that me and Dr N discuss our thoughts and stuff we read about it. It’s going to be a unique experience. I’m just taking each day as it comes.
Time for bed, a good sleep always helps.
Good night all, sleep well.
❤️🙏🏽
Saturday 14th December
Good evening everyone, I hope your weekend is going great.
I slept well and feel better than yesterday. I pushed myself to stretch which I haven’t done for a few days. Just too many thoughts in my head, I feel as if I’m getting lazy and not myself, not sure if it’s the thoughts or just subconscious thoughts about the next steps for me and the coming weeks. I’ll push myself out of this cycle by getting on my cycle and long walks.
More chores today, nothing much else was planned. I felt tired by this afternoon so it was a restful evening. Legs are still feeling heavy and tired but I’m sure it will pass.
Time for bed, I’m going to try and get up early and fresh enough to get on my bike.
Good night all, sleep well.
❤️🙏🏽
Sunday 15th December
Good evening all, I hope you’ve had a lovely Sunday.
What a difference a good sleep makes, I managed 30 minutes on my bike and even full stretches.
It helped clear my mind, lifted me out of my rut.
We even went on a short 2.5 mile walk, even watched a women’s football match during our walk. That was good fun.
I’m feeling tired but good, more positive, the effects of the drugs have nearly all disappeared.
Homemade fish, chips and peas for dinner, heathy (griddle pan sea bass and air fryer chips) and delicious.
Dr N and me had a lovely chat, we’re both having to sacrifice so much, not meeting family and friends, not being able to travel, not even being able to go to a bar or restaurant. Once my treatment has completed, we intend on catching up with everyone. It’s been mentally difficult for us but the fact that we can talk to each other about our deepest feelings and how it’s affecting us is something special. We understand each other and together we’re so much stronger and take on anything and anyone. We laugh, we joke, we get really tired yet we talk but above all, we always smile and hug.
Time for bed, we have an early start, just chores and things to do.
Good night all, sleep well.
❤️🙏🏽
Monday 16th December
Good evening everyone, I hope you’re well.
I slept well, felt good this morning, tempted to ride my bike but legs felt tired so instead, I cut my hair, had a shower and we went for a 5 mile walk, such a lovely day as well, I’m glad I chose a walk.
Our afternoon was spent working then relaxing with the odd jigsaw puzzle.
More thoughts today, I usually cut my hair once a week, I’m due high dose chemo on 30/12 so I have 2 more haircuts to go before I won’t have to cut my hair for about a month because I won’t have any. Yep, random thoughts always come and go.
I’m feeling tired this evening, all the exercise is catching up with me.
Time for bed and a chance to recharge.
Good night all, sleep well.
❤️🙏🏽
Tuesday 17th December
Good evening everyone, I hope your day went well.
I had a good sleep, but not refreshing.
After breakfast I managed 30 minutes on my bike, I was in two minds about doing it as I was feeling tired but I pushed myself. Full stretches after.
I felt good after my shower but as the day wore on, I got more tired, I even fell asleep on the sofa late afternoon. How come an afternoon nap always feels better than a nights sleep?
It’s been a restful day, I didn’t venture outside today, I had a few chores to do indoors. We’ve started collating items I need to take for my transplant. There aren’t going to be many clothes, more toiletries and medication.
I have to admit that it’s been a nice day to just rest, my mind hasn’t been as active, less thoughts about the upcoming appointments. I think the exercise has had a huge effect on that, just a shame I’m not allowed to lift any weights.
Time for bed, getting up early is really good for positive mental attitude.
Good night all, sleep well.
❤️🙏🏽
Wednesday 18th December
Good evening everyone, I hope you’re well.
I slept well, and like yesterday ate breakfast and then on my bike, I managed 30 minutes again. I’m not feeling as tired as I used to before which must mean I’m doing well.
Chores carried out this morning and I had a myeloma support group meeting this afternoon. The support, advice and companionship is excellent, everyone is at different stages of their treatment and the advice they offer is invaluable. It is a huge help.
After the meeting I had some work to do and after an early dinner, we relaxed.
We went through our list of questions for the consultant at our appointment tomorrow to make sure we’re prepared.
An early start tomorrow so it’s going to be an early night. I’m liking waking up early in the mornings. My muscles seem to recover rather well from the exercises as well so as long as that is happening, the more exercise I’ll try and do, anything to get me ready. Possible bike ride tomorrow as well but that may be exchanged for a long walk before my appointment. Let’s see how I feel in the morning.
Time for bed.
Good night all, sleep well.
❤️🙏🏽
Jes just read your blog of past few days…no internet as we were on a cruise ship. You are doing really well, stay positive and you will fight this. We are so proud of you and Nisha for all your enthusiasm, energy and positivity. You are going to beat this. Thinking of you both ❤️❤️❤️