Saturday 16th November
Good evening all, I hope you slept well.
I slept well, I’m feeling good. I’m feeling better each day so I’m trying to make the most of it before the stem cell transplant and chemo treatment starts when I know I’ll start to feel the after effects like fatigue but the future looks bright.
It’s been a busy but relaxing day. While the weather looks good, yeah, cold but good, we may go for a few long walks, Dr N needs to complete another 40 ish miles.
I’m not feeling as tired as I have done previously, something I haven’t experienced before. When I used to get tired before diagnosis, I knew I’d feel it the next day, post the current chemo treatment, I feel more refreshed.
Let’s see how I feel over the next few days after all the walking.
Time for sleep and a fresh day tomorrow.
Good night all, sleep well.
❤️🙏🏽
Sunday 17th November
Good evening everyone, I hope you had a good day.
I didn’t sleep too well, lots of tossing and turning.
I felt a little tired today but managed a 4.5 mile walk, very windy and cold.
It’s been a lazy Sunday, it much else has happened.
This evening I’m feeling tired and cold, I’ve had good food today. I’ve read that many people suffering from multiple myeloma really feel the cold. At home, you’ll find me wearing a fleece and beanie, sometimes wrapped in a blanket, yet when I go for a walk, I get so hot, no matter how cold the weather is and how many layers I’m wearing. All just plain old weird.
Time for bed. The walk should allow me to sleep soundly.
Good night all, sleep well.
❤️🙏🏽
Monday 18th November
Good evening all, I hope you had a lovely day.
I slept well and I’m feeling good, a little tired, chemo brain is slowly clearing.
It’s been another relaxing day, went walking today and did some window shopping. I can’t buy any clothes because I have no idea what size I’ll be after treatment.
Another cold day and looking at the forecast, frost and snow looks set to move in.
Feeling tired now so time for bed and a good sleep.
Good night all, sleep well.
❤️🙏🏽
Tuesday 19th November
Good evening all, I hope you’re all well.
My sleep was okay, I didn’t feel rested this morning. What a cold day it’s been, and the rain just didn’t want to stop.
I was bombarded with more hospital appointments today, I now have kidney and heart tests lined up, all to prepare me for my stem cell transplant. It’s going to be a busy December.
We had a day out today, just spent some time away from all the medical thoughts. I don’t think there’s been a day where I haven’t had a thought about what’s happened, going to happen and the future.
I cooked our version of gumbo, consisting of tofu, pearl barley, okra, tomatoes and carrot, very tasty and healthy.
Some bedtime reading, the hospital sent me a stem cell transplant pack to read.
Over the last few days I’ve been feeling good. My fitness is no where near what it was, it now takes me a day or two to recover from a 5+ mile walk but the more I can do it, the easier it will get and the fitter I get the more it will help with the stem cell transplant.
Time for bed and a good sleep.
Good night all, sleep well.
❤️🙏🏽
Wednesday 20th November
Good evening all, I hope you’ve had an enjoyable day.
I slept well but have felt a little tired today. I met T & B for coffee and treats. It was so cold this morning, just lucky there was no one inside so we stayed in the warm. It was good to catch up, not long to go before I’ll be on treatment starts again and then lockdown.
I also attended the Myeloma support group zoom meeting. I get to meet people at different stages of treatments, and how long they’ve had Myeloma. It sure is a life changing cancer but positivity and support are the keys things. I have no idea how my life will be when I’m in remission but I think it’s going to be difficult to adjust mentally. Time will tell.
It’s been a cold day, I’ve managed to complete some work and then just rested, getting ready for my bone marrow biopsy tomorrow, followed by my face to face appointment with my consultant.
Early night and a good sleep tonight. It’s going to be very cold so wrap yourself in your duvet!!!
Good night all, sleep well.
❤️🙏🏽