Wednesday 25th September

Good morning all, I hope you’re all well.

Early rise, slept well and feel good today, it’s the steroids I’m on.

Breakfast eaten, no time for stretches. Showered and straight out of the door at 8.45am.

I’ve been up the M1 today for work, Dr N gave me a packed lunch which was needed.

I’m back home now, arrived back at 4pm, feeling a little tired but generally ok, it’s the steroids effect, let’s see if I have energy tomorrow.

It’s been a resting evening and now time for bed. I’m feeling tired but ok, chemo head will always be present.

Good night all, sleep well.

❤️🙏🏽

Thursday 26th September

Good morning everyone, I hope you slept well.

I slept well, feeling a little less tired, breakfast then a bike ride, followed by stretches this morning.

Well, that was a bike ride…

I managed 60 minutes which was a total surprise, I’ve just finished my stretches and I feel good.

Had a call from the hospital cancer physiotherapist and she says that my exercise routine is spot on and there’s nothing she can add to what I do…excellent news!!!

Today has been a very good day, I’ve had energy today, legs are tired but generally feeling good, just a few niggles but that’s because I haven’t cycled for an hour in a very long time, my body will adjust.

I’ve ate well today so all is good.

Time for bed and a good nights sleep.

Good night all, sleep well.

❤️🙏🏽

Friday 27th September

Good morning everyone, I hope you’re all had a wonderful evening.

I slept well, feeling a little tired this morning, legs are a little heavy, I’m trying to keep the fatigue at bay.

Stretches and breakfast completed, next is a quick shower before I meet T & B for coffee and treats. It’s been raining all night and still hasn’t stopped, I wish I had spread the grass seeds and soil on the lawn.

I’ve been feeling tired all day, fatigue hasn’t hit, my legs feel heavy and I’m lacking energy. The cold weather doesn’t help, but I’m plodding on.

I would say today has been a bad day with hints of a good day, I’m glad it wasn’t a total bad day full of fatigue.

Tomorrow is a new day full of new adventures.

Time for bed and a good sleep.

Good night all, sleep well.

❤️🙏🏽

Saturday 28th September

Good morning all, I hope you slept well.

I had a good sleep but fatigue is knocking on the door, I’m feeling tired with heavy legs. I’ve just eaten breakfast, I will stretch soon, followed by a shower and then if I’m feeling good, a long walk will be on the cards. It’s a lovely sunny but cold day. My right eyelid has a slight infection which I think is down to the sun protection lotion blocking my eyelid ducts. I’m hoping warm compresses will clear it.

Well, fatigue has arrived and taken control. Lacking energy and feeling very lethargic.

Today has been a bad day, I haven’t been able to do much, my energy levels are low, feeling fatigued and generally tired. I was waiting for this day to come, I knew the fatigue would hit me sometime. Time for bed and a good restful sleep. Tomorrow will be a better day.

Good night everyone, sleep well.

❤️🙏🏽

Sunday 29th September

Good morning everyone, I hope you had a lovely evening.

I slept well but I’m still fatigued and lacking energy, my muscles feel weak.

Breakfast and stretches completed, haircut and shower finished and now we’ll try a very short walk around the block.

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I just want to give you an explanation why I can’t attend functions and why I’m having to be extra careful.

My immune system

Before I was diagnosed with multiple myeloma, my immune system was fully functioning.  Since treatment has started, my immune system is just about functioning.  I have and am still being very cautious because I’m vulnerable to all infections and viruses.  If I do catch something then it can be fatal because I’m susceptible to sepsis.  I take my temperature twice a day, if my reading is above 38c then I have to rush to A&E, they give me iv antibiotics and recovery time can vary from days to weeks, it can also mean my chemo treatment has to be stopped while I recover.

Currently, my immune system is running at approx 20%.  When I get the stem cell transplant, my immune system will be 0% which will eventually start to build up so I’m always having to be extra cautious. It is hard but it’s part of my journey.

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Just got back from a 3.5 mile walk, it was good to get out but also a bit of a struggle. Now back for some lunch.

It’s been another bad day, I’ve been fatigued all day, really lacking energy, especially in my legs, chemo brain has been present all day so not much has been achieved. To top it all, I’ve got drops to treat my eyelid infection.

Time for bed and some much needed sleep.

Good night all, sleep well.

❤️🙏🏽

Monday 30th September

Good morning all, I hope you slept well.

I had a good nights sleep, I’m feeling less fatigued with a little more energy.

Breakfast eaten, I managed 30 minutes on my bike, I couldn’t do anymore, I just didn’t have the energy, the 30 minutes was a struggle but I’m glad I pushed myself. Stretches next followed by a shower.

It’s been a quiet relaxing day, I’ve been home, finished some work on my laptop.

I’ve been feeling a little fatigued but more energy than yesterday. I think I needed the rest today. It’s been a bad ish day.

Time for bed and some restful sleep ready for treatment day tomorrow.

Good night everyone, sleep well.

❤️🙏🏽

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