Wednesday 7th August

Good morning all, hope you had a good sleep. I had a very light sleep, I think I only managed about 4 hours of deep sleep, it’s the steroid tablets.

I feel a little rested, not as fatigued as yesterday but it’s still early. I’ll do my stretches soon and then breakfast.

Stretches done, breakfast done, shower done…had to do some work, now home for lunch and to do a bit more work and then maybe some gardening. I’m feeling less fatigued and my head is a little less woolly which are all good signs, I hope it lasts over the next few days.

No time for gardening today, too much paperwork. I’m feeling the same as earlier in the day which is a good sign. Dinner soon.

Dinner eaten, tablets taken, the evening was spent relaxing.

Final bedtime tablets taken, I’m feeling a little tired, legs feel heavy, but that’s probably down to the lack of sleep last night. I hope I’ll be able to sleep tonight. Head is less woolly so good signs.

Time for bed, good night all, sleep well.

❤️🙏🏽

Thursday 8th August

Good morning everyone, hope you all had a lovely evening. I couldn’t get to sleep until after 1am, I did sleep but the quality wasn’t great. I’m feeling less fatigued today and head is less woolly.

Stretches and breakfast all done, morning tablets swallowed and shower next. I then have to go and collect a garden roller from a local resident who is giving it away for free, I’ll be rolling it home. Next task will be to visit our local garden centre for some sand and soil mix.

Had lunch then went to the garden centre but no mix so will have to look elsewhere. Roller is in the shed, it’s very heavy but it’s a good one, I pulled it all the way home, that’s my exercise for the day.

I’m feeling ok, still a little tired but body does feel weird today, no idea why, let’s see how the evening goes.

Nice healthy dinner and dessert followed by tablets, still feeling the same.

Tablets taken and now time for bed, I’m feeling tired and just not right this evening.

Good night all, sleep well.

❤️🙏🏽

Friday 9th August

Good morning everyone, hope you’re all well.

I slept well, but could have done with a few more hours. Managed to do my stretches and had my usual breakfast with tablets.

This morning I had a coffee with T and treats for B, it’s a lovely day but the wind is just too strong. It was good to catch up.

Just had a healthy salad for lunch with homemade fresh vegetable juice.

I have a rash appearing and Dr N says it’s suspected shingles, this could also explain my recent tiredness. We’ve contacted our specialist nurse so just waiting for a call back to get their advice.

Photos have been sent, now we wait for their verdict.

We’ve just come back from a 2.5 mile walk, it’s the slowest I’ve ever walked!!! I’m so out of condition but I intend to change that.

Good news, it’s not shingles, it’s a reaction to one of the chemo injections so nothing serious and no need to worry.

Another healthy dinner, usual dessert and tablets. I’m feeling better than yesterday, still a little tired, a little light headed but in good spirits.

Time for bed, final tablets taken, I’m feeling the same which is good, I hope a good sleep and a lay in will do me wonders.

Good night all, sleep well.

❤️🙏🏽

Saturday 10th August

Good morning everyone, I hope you had a lovely evening.

I slept well but I’m still feeling tired this morning, I think my body is still fighting the infection so it’s hard to know what the best thing to do. Rest is top of the list, anything to let my body rest and try and beat the infection.

No stretches this morning, just breakfast and shower. Maybe some stretches later.

Rash is still there but not spreading. It seems that my body is fighting the infection and yesterday’s walk didn’t help because my body is now trying to recover from the walk and the infection hence feeling tired. I’m going to have to let my body fight the infection and let it totally recover before I can even consider doing walks. This is the new way of life at the moment, we’re learning new things everyday and we’re adjusting as we go, it’s frustrating but it has to be done, I just have to be patient and not push my body so much.

Quick lunch then a relaxing afternoon, even fell asleep while watching tv, only plan for today is to rest.

It’s been a relaxing day, still not totally ok but making slow progress.

Another healthy dinner, lovey food made by Dr N. Usual dessert and tablets. Now we’re going to rest and maybe watch a movie.

Well, we sure know how to spend a Saturday night, we’re back in A&E, my temperature has hit 38c, they’ve taken bloods, checked my bp and temperature, it’s gone down to 37.8c but they will have to do all their checks.

I’m now hooked up to an iv with paracetamol and antibiotic flowing into me.

It’s going to be another late night.

It’s midnight and we’re still waiting to be seen by the doctor.

All ok, Doctor said nothing to worry about but to be safe, a weeks worth of antibiotics, we got home at 1.45am. Tired now.

Good night all, sleep well.

❤️🙏🏽

Sunday 11th August

Good morning all, hope you’re well.

What an evening, I even woke up early so am feeling shattered. My head feels very woolly so it’s a day of rest and monitoring my temperature.

I managed to do my stretches this morning, followed by breakfast and usual tablets with the addition of antibiotics.

Sunday is usually haircut day but all depends on how I feel, could be a day of snoozing.

Haircut has been postponed until tomorrow, I’ve showered and now relaxing watching tv. My torso feels sensitive and head is still woolly with a feint headache but that’s probably due to lack of sleep. No other plans for today, sadly I can’t currently make any plans, just have to take each day as it comes, I’ve no idea how I’m going to feel when I wake up but we’ll get on top of it and make adjustments as we go.

Lunch has come and gone. Nothing much has happened today. I’m still feeling the same, my legs are really aching. Even from all the cycling I’ve done, my legs have never ached like this. No sign of a snooze, I’m just too tired.

Quick dinner tonight, with usual tablets including an antibiotic. Just bedtime tablets left to take.

Tv for the rest of the evening.

Tablets taken and time for bed, I’m still feeling the same, no change at all. I just hope I can sleep and I feel better tomorrow.

Good night everyone, sleep well well.

❤️🙏🏽

Monday 12th August

Good morning all, hope you slept well.

I slept well, even managed an extra hour in bed. I’m feeling a little better than yesterday, my temperature has reduced, legs are not as achy, torso is still sensitive and head is woolly, it feels like I’m spaced out.

No stretches today, just breakfast, haircut and shower. It’s such a beautiful day and I’m stuck indoors!! Health comes first and I need to rest.

A very healthy lunch today, we’re experimenting by eating our main meal at lunchtime and a snack in the evening.

We’ve heard back from our specialist nurse and after speaking to the doctor, they advise to postpone my treatment for tomorrow so my body can rest and get over the infection. It will be back to normal from next week. I still have the usual tablets to take except the chemo tablets.

Had a small dinner today and then just relaxed, still feeling the same but the leg aches have returned along with arm aches.

Bedtime, I need to have a good sleep and help my body fight this infection.

Good night all, sleep well.

❤️🙏🏽

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