2.0 Infusion Treatment 1

Actually managed a good nights sleep but auto alarm still wakes me up at 5.30 ish…I’m more refreshed today.

Don’t worry, no ratings for my breakfast, but it’s always porridge!!! I’ll take a photo for nostalgic reasons 😜.

After a lazy breakfast, my mother checked in, still very raw for her but she’s keeping positive, she popped round and gave us a religious statue and a daily ritual to carry out. Thanks mum ❤️

My appointment is at 1pm today so a quick shower and then prepare for the day…refill our water bottles and pack our backpack, snacks and books, put on our rain jackets, yep, it’s July and the rain is coming down, and off we set. Oh yeah, gentlemen over the age of 50, please please don’t put off doing your bowel cancer poo test, I returned mine today in their prepaid envelope.

Thank you all for the good luck messages both for today and for the last few weeks, it all really helps and really lifts our spirits. 🙏🏽

The train and tube were all running on time and we got to UCLH McMillan Centre early. I’m on the 4th floor today. While sitting in the waiting room, a lady appeared with a trolley full of snacks. She eventually came to us and was adamant that I chose something, sadly I can’t eat bread so I opted for popcorn and a health bar. I was getting ready to pay but it was free, it’s part of the cancer care charity scheme. I just love the NHS, especially the staff, they have so much empathy, I’m in awe!!! Without getting political, WE NEED A CHANGE OF GOVERNMENT!!!

I’m called in early and they do their usual checks, BP, heart rate, and weight. Then the nurse inserted a cannula into my arm, but not at the elbow. Dr Madan explained that because of the number of blood tests I’ll need, the cannula will be inserted in a vein in my forearm.

Today I had my first infusion treatment with a drug called Zometa. This is a bone strengthening drug to help with my chemo which I have to have once a month for several months.

As yet, no side effects but possible side effects are shivers, feeling cold and tired.

In the waiting room
Treatment has started!!!

The infusion took 20 minutes followed by 5-10 minutes of a process called flushing. They then took my BP and heart rate again, I’m still heathy!!! And I was ready to go.

After a quick lunch, we headed home because I wasn’t sure if I would react to the treatment.

We’re now home so I can rest.

No side effects, we’re watching a film called LaRoy, Texas, it’s stupid but funny!!!

I have two days of rest before I head back to UCLH on Friday to sign the consent forms, ask any questions we have and also meet the pharmacist, more tablets to come my way.

I will be updating these pages as and when I remember things so please keep checking.

Comments are always welcome!!!

Love you all ❤️🙏🏽

UPDATE…

I suffered my first side effect lastnight. The nurse warned me that I would feel cold like symptoms and yep, by the evening, I was watching tv wearing a hoodie, beanie and wrapped in a blanket. Happy to say that I feel back to normal this morning.

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5 responses to “2.0 Infusion Treatment 1”

  1. Jason and Nisha so pleased for this blog, bringing awareness to bone marrow cancer is a must. We are on the train with you on your journey and giving positivity vibes together. Remember we are here for you any time night or day. We will get through this together 👍👍👍

    Bhartiya and Dilip ❤️🤗❤️

  2. Good luck Jes, I hope you keep feeling ok.

    Really brave of you to blog your journey, Cara x

  3. Tough time dont last…..tough people do.
    Keep up with healthy lifestyle .
    You are always in my thoughts.

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